Nimue Fong Yee
Nimue is a 9 year old artist who has been diagnosed with
Hypermobility Syndrome/Ehlers-Danlos Syndrome. Please help her spread
What is Ehlers-Danlos Syndrome?
An inherited connective tissue disorder caused by a genetic defect in the collagen.
Collagen is the "glue" in our body. It is in our skin, joints, muscles, ligaments, blood vessels and visceral organs which causes these structures to be elastic. The severity of EDS can range from mild to life-threatening. A common issue with patients with EDS is skin fragility and unstable joints. There are six major types of Ehlers-Danlos Syndrome.
Hypermobility Type, Classical Type, and Vascular Type are the three most common types of Ehlers-Danlos Syndrome. The less common types are Kyphoscoliosis Type, Arthrochalasia Type, and Dermatosparaxis Type.
Nimue and her family are currently diagnosed with the Hypermobility Type however are on watch for possibly being the Vascular Type.
Ehlers-Danlos Syndrome symptoms usually include joint hypermobility, unstable joints, joint pain (varies in severity), and hyperextensible joints (joints move beyond normal range of motion). Patients with Hyermobility Type also tend to have early onset osteoarthritis and/or osteoporosis.
There are also common skin issues with Ehlers-Danlos Syndrome patients such as fragile skin (tears easily), severe scarring, poor wound healing, and having "stretchy skin".
For more information on Ehlers-Danlos Syndrome, please check out these links!
The Ehlers-Danlos Society
Ehlers Danlos Network
Nimue and her family are currently diagnosed with the Hypermobility Type however are monitoring for possibly being the Vascular Type due to vascular issues within her immediate family.
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